BREAST CANCER RESOURCES
Who, What, When, Where, and How
All these questions can be overwhelming when you are diagnosed with breast cancer. Fortunately, resources are abundant for those seeking answers.
A FRESH CHAPTER
A Fresh Chapter provides educational and leadership workshops, volunteer programs, and support for people impacted by cancer. In addition, through virtual and on-site programs around the world, AFC works to help people emotionally recover from experiences with cancer.
AMERICAN ASSOCIATION FOR CANCER RESEARCH (AACR)
(215) 440-9300
https://www.aacr.org/
AACR programs support cancer researchers and offer resources for people affected by cancer, including education, personal stories, and Cancer Today magazine.
AMERICAN CANCER SOCIETY (ACS)
(800) 227-2345
https://www.cancer.org/
ACS maintains a website with information about all types of cancer, including news, research, statistics, and tips for living with cancer. Breast cancer topics cover risk, early detection, and understanding diagnosis, treatment, and reconstruction
AMERICAN CANCER SOCIETY’S LOOK GOOD FEEL BETTER PROGRAM
(800) 227-2345
https://lookgoodfeelbetter.org/programs/
Look Good Feel Better works to improve self-image, confidence, and quality of life for people undergoing cancer treatment. The program offers free group workshops, salon consultations, and guidance on skin and nail care, makeup, head coverings, and wigs.
ANGEL FLIGHT EAST (AFE)
(215) 358-1900
https://angelflighteast.org/
Angel Flight East gives free air transportation to children and adults who need medical treatments far from home. AFE’s volunteers serve the Northeastern United States and link with other volunteer pilot organizations for stops beyond its reach.
ANTICANCER LIFESTYLE PROGRAM (ACLP)
(603) 226-4408
https://anticancerlifestyle.org/
ACLP is an online lifestyle course for people diagnosed with cancer and people who want to reduce their risk of many conditions, including cancer.
BREAST ADVOCATE APP FOR IPHONE AND ANDROID
https://breastadvocateapp.com/
This free app, designed for people diagnosed with breast cancer or at risk of developing breast cancer, provides personalized information about breast cancer surgery and reconstruction options and access to research news.
BREASTCANCER.ORG
610-642-6550
https://www.breastcancer.org/
Breastcancer.org provides information about breast cancer, including tests, types of breast cancer, treatment options, and clinical trial news. Breastcancer.org also features expert podcasts and personal stories from people diagnosed.
BREASTCANCERTRIALS.ORG (BCT)
(888) 282-7099
https://breastcancertrials.org/
BreastCancerTrials.org encourages people living with breast cancer to consider clinical trials a regular part of care. The organization educates people about practices and offers tools to make it easier to find tests specific to a person’s breast cancer diagnosis and treatment history.
BRINGING HOPE HOME
(484) 580-8395
https://bringinghopehome.org/
Bringing Hope Home gives financial and emotional support to families facing cancer. Through its Light of Hope Family Grant Program, the organization offers a one-time grant to pay essential household bills for families affected by cancer in the Greater Philadelphia Area.
CANCER AND CAREERS
(646) 929-8032
www.cancerandcareers.org
Cancer and Careers offer education, events, legal information, career coaching, job search support, interview guidance, resume services, and more for people diagnosed with cancer.
CANCERCARE
(800) 813-4673 (800-813-HOPE)
www.cancercare.org
CancerCare offers counseling, case management, financial assistance, support groups, educational programs, and publications for anyone living with cancer. In addition, oncology social workers and cancer experts provide CancerCare services.
CANCERCONNECT
(208) 727-6880
http://www.cancerconnects.org/
CancerConnect provides cancer-related news, information, and peer support services to people living with cancer, caregivers, and advocates
CANCER LEGAL RESOURCE CENTER (CLRC)
(866) 843-2572 (866-THE-CLRC)
www.cancercenter.com
CLRC provides information and supportive resources for cancer-related legal, job, and insurance issues.
CANCER.NET BY AMERICAN SOCIETY OF CLINICAL ONCOLOGY (ASCO)
(571) 483-1780
www.cancer.net/about-us/about-asco
Cancer.Net is an educational resource for people diagnosed with cancer and their caregivers. The site offers information about many kinds of cancer including breast cancer. Cancer.Net also offers publications, expert health blogs, and monthly e-newsletters.
CANCER SUPPORT COMMUNITY (CSC)
(888) 793-9355
www.cancersupportcommunity.org
CSC offers emotional and social support services to people living with cancer. Through its network of centers, CSC connects people to programs based on their unique needs. Services include support groups, counseling, education, and healthy lifestyle programs run by trained and licensed professionals.
CARINGBRIDGE
(651) 452-7940
https://www.caringbridge.org/
CaringBridge offers free, private websites for people affected by severe illness to share health updates with friends and family. These websites also allow loved ones to send messages of support.
CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC)
(800) 232-4636 (1-800-CDC-INFO)
https://www.cdc.gov/
The CDC is a national public health agency that shares guidance and information about many health conditions, including breast cancer. CDC has up-to-date information on breast cancer risk factors, symptoms, statistics, research, and treatments. The agency also helps people access mammograms and screening programs through its National Breast and Cervical Cancer Early Detection Program (NBCCEDP).
THE CHRYSALIS INITIATIVE
(800) 929-4979
https://thechrysalisinitiative.org/
The Chrysalis Initiative offers support for Black women diagnosed with breast cancer. Chrysalis aims to make it easier for disparate groups to get care through individual coaching, mobile resources, and online learning opportunities.
CURE TODAY
(609) 716-7777
https://www.curetoday.com/
Cure Today is a magazine and online resource presenting cancer research news coverage, patient stories, and more. Living Beyond Breast Cancer is proud to partner with Cure Today to offer the latest medical news and empowering stories to people affected by breast cancer.
FIGHTING 4 THE TATAS BREAST CANCER ORGANIZATION
http://fighting4thetatas.org/
(909) 755-5350
Fighting 4 the Tatas Breast Cancer is a 501 (c) (3) nonprofit Corporation. Committed to increasing awareness of the devastating impact Inflammatory Breast Cancer (IBC), Triple Negative (IBC), Metastatic (IBC), and others have on women and men.
FORCE: FACING HEREDITARY CANCER EMPOWERED
(866) 288-7475 (866-288-RISK)
https://www.facingourrisk.org/
FORCE provides education and support to people and families at risk for testing positive or who have tested positive for inherited gene mutations that can lead to cancer. The organization advocates for access to care and better treatment and prevention options for people facing hereditary cancer.
FOR THE BREAST OF US
For the Breast of Us aims to empower women of color affected by breast cancer through education, advocacy, and community. Offerings include medical expert webinars and video roundtables with others who’ve been diagnosed.
HEALTHWELL FOUNDATION
(800) 675-8416
https://www.healthwellfoundation.org/
The HealthWell Foundation provides financial help with treatment-related costs, including the cost of supplies, medicine, surgeries, and travel.
HEALWELL
(703) 662-1603
https://www.healwell.org/
Healwell offers massage therapy designed for people diagnosed with cancer or other serious illnesses and caregivers. Serving the Washington, DC metro area, Healwell has inpatient and outpatient services. Healwell also trains massage therapists to adapt massage techniques to people with serious illnesses’ unique needs.
HERCONNECTION
A free support program designed specifically for people with HER2+ breast cancer taking Genentech medicines, providing information and resources that can help educate and empower you throughout your treatment journey.
HIS BREAST CANCER AWARENESS
https://www.hisbreastcancer.org/
HIS Breast Cancer Awareness offers education and resources to men with breast cancer and men at high risk for being diagnosed with breast cancer. By providing connection and support, the organization works to reduce the stigma often felt by men diagnosed with breast cancer.
IMERMAN ANGELS
(866) 463-7626 (866-IMERMAN)
https://imermanangels.org/
Imerman Angels is a support organization for people diagnosed with cancer and for caregivers of people diagnosed with cancer. Offering a free, personalized, one-on-one volunteer match with someone who’s had a similar experience, Imerman Angels connects people worldwide for phone, online, or in-person support.
INFLAMMATORY BREAST CANCER (IBC) RESEARCH FOUNDATION
(877) 786-7422 (877-STOP-IBC)
https://www.ibcresearch.org/
IBC Research Foundation offers information, education, and advocacy for people diagnosed with inflammatory breast cancer. In addition, the foundation supports and summarizes research on the causes of IBC and IBC treatment research.
LOBULAR BREAST CANCER ALLIANCE (LBCA)
https://lobularbreastcancer.org/
LBCA is a network of patient advocates diagnosed with lobular breast cancer and works with breast cancer researchers and clinicians. The alliance strives to increase knowledge of lobular breast disease and promote research that leads to advances in prevention, diagnosis, treatment, and follow-up care.
MANY SHADES OF PINK BREAST CANCER FOUNDATION
(619) 937-2041
http://www.mymsop.org/
An organization for breast cancer support, advocacy, and resources for women of color. Our mission is to help save lives by providing free screening mammograms and achieving health equality through education.
METASTATIC BREAST CANCER (MBC) ALLIANCE
The Metastatic Breast Cancer Alliance works to increase awareness and education about MBC and advance policy and research through its programs.
METASTATIC BREAST CANCER NETWORK (MBCN)
(888) 500-0370
http://mbcn.org/
The Metastatic Breast Cancer Network is an all-volunteer, patient-led advocacy organization that funds metastatic breast cancer research and provides information about the diagnosis, treatment, clinical trials, research, and ways to find support.
METAVIVOR
METAvivor funds research on extending and improving the quality of life for people living with metastatic breast cancer. The organization awards grants to individuals with clinical or doctoral degrees whose research proposals show strong potential to make an impact on the stage IV community. METAvivor also raises public awareness of stage IV MBC and offers guidance for starting peer-to-peer support groups.
MY HOPE CHEST
(727) 642-4243
https://www.myhopechest.org/
My Hope Chest educates people diagnosed with breast cancer about breast reconstruction surgery. The organization also funds uninsured and underinsured women who cannot afford reconstruction surgery.
MYLIFELINE.ORG
(888) 234-2468
https://mylifeline.org/
MyLifeLine.org helps people with cancer and caregivers to create free personalized websites that serve as online support communities where family and friends can gather.
NATIONAL ACCREDITATION PROGRAM FOR BREAST CENTERS (NAPBC)
NAPBC is run by the American College of Surgeons and offers accreditation to centers that provide breast cancer care. Breast centers accredited through NAPBC must comply with standards of care, which aim to provide timely, modern, high-quality care based on scientific research. NAPBC’s search tool helps people find accredited breast centers.
NATIONAL BREAST AND CERVICAL CANCER EARLY DETECTION PROGRAM (CDC)
(800) 232-4636
www.cancer.org
A program of the CDC, NBCCEDP provides access to screenings and services for women with low income and women who are uninsured or underserved.
NATIONAL CANCER INSTITUTE (NCI)
(800) 422-6237
https://www.cancer.gov/
NCI is a resource for learning about all types of cancer, including breast cancer. NCI also shares information about ongoing research on breast cancer.
NATIONAL COALITION FOR CANCER SURVIVORSHIP (NCCS)
NCCS advocates for improved research, regulation, funding, and cancer care delivery. Through its programs and resources, the group provides tools for self-advocacy to people who’ve been treated for cancer. NCCS also helps other organizations address public policy issues that affect people living with cancer.
NATIONAL LYMPHEDEMA NETWORK (NLN)
NLN offers education and guidance for understanding and managing lymphedema, a swelling condition that can sometimes happen after breast cancer surgery.
ONCOLINK
(215) 349-8895
https://www.oncolink.org/
OncoLink, managed by the University of Pennsylvania, provides a complete database of information about specific types of cancer, updates on cancer treatments, and news about research advances.
PAN FOUNDATION
(866) 316-7263 (866-316-PANF)
https://www.panfoundation.org/
PAN (Patient Access Network) Foundation offers financial assistance to people who cannot afford treatment-related out-of-pocket costs. People who need help can complete an online application to learn more about eligibility and available funds.
THE PINK FUND
(877) 234-7465 (877-234-PINK)
https://pinkfund.org/
The Pink Fund gives short-term financial aid to people with breast cancer who are in active treatment. The Pink Fund makes direct bill payments for health insurance premiums and non-medical bills such as mortgage or rent, utilities, car payments, and car insurance.
RESEARCH ADVOCACY NETWORK (RAN)
(877) 276-2187
https://researchadvocacy.org/
RAN works to improve patient-focused cancer research through collaboration with other cancer-centered groups, scientists, and advocates.
RETHINK BREAST CANCER
(416) 220-0700
https://rethinkbreastcancer.com/
Rethink Breast Cancer educates and connects young people being treated for or concerned about breast cancer. The group’s advocacy work focuses on changing and improving education, research, treatment, and services.
SHARE | SUPPORT FOR WOMEN’S CANCER
(844) 275-7427
https://www.sharecancersupport.org/
SHARE connects people affected by breast, ovarian, and uterine cancers through its supportive network of others who’ve been diagnosed. Services include a hotline (Spanish and other languages), support groups, wellness programs, educational meetings, and advocacy activities.
SHARSHERET
(866) 474-2774
https://sharsheret.org/
Sharsheret provides culturally sensitive education and support to young Jewish women diagnosed with breast cancer and people at risk of developing breast cancer. The organization also shares educational resources with Jewish communities and healthcare organizations.
SISTERS NETWORK, INC.
(866) 781-1808
http://www.sistersnetworkinc.org/
Sisters Network works to increase local and national attention to the impact breast cancer has on the Black community and shares resources for Black women affected by breast cancer.
SUSAN G. KOMEN
(877) 465-6636 (877-GO-KOMEN)
https://www.komen.org/
Susan G. Komen works to fund and improve breast cancer research, community health, global outreach, and public policy initiatives. Offerings include information about breast cancer, clinical trials, and advocacy.
THE TUTU PROJECT
(201) 785-7974
https://thetutuproject.com/
The Tutu Project raises funds distributed to nonprofit groups supporting people diagnosed with breast cancer. The organization is known for photos of its founder and others wearing tutus.
THERESA’S RESEARCH FOUNDATION
Theresa’s Research Foundation funds research for metastatic breast cancer treatment. In addition, the foundation offers a metastatic breast cancer clinical trial search tool and patient-advocacy training.
TOUCH, THE BLACK BREAST CANCER ALLIANCE
(443) 758-1924
https://touchbbca.org/
Touch aims to improve clinical trial research and access to healthcare for Black women diagnosed with breast cancer and provides guidance for understanding and finding clinical trials. The alliance also connects Black women with breast cancer to peers and professionals.
TRIAGE CANCER
(424) 258-4628
https://triagecancer.org/
Triage Cancer educates people diagnosed with cancer and caregivers about legal and practical issues. In addition, the organization offers information, events, and downloadable guides on managing health insurance, finances, and employment after a diagnosis.
TRIPLE NEGATIVE BREAST CANCER FOUNDATION
Helpline: (877) 880-8622 (877-880-TNBC)
Main office: 646-942-0242
https://tnbcfoundation.org/
This organization provides information on triple-negative breast cancer and funds research on treatment. The foundation also offers an online community, webinars, downloadable guides, and financial help.
TWISTED PINK
(502) 890-2662
https://www.twistedpink.org/
Twisted Pink raises funds and provides online connections and support for people living with metastatic breast cancer. Funding is focused on MBC treatment research and awareness.
U.S. FOOD AND DRUG ADMINISTRATION (FDA)
(888) 463-6332 (1-888-INFO-FDA)
https://www.fda.gov/
The FDA offers the most up-to-date information about approved cancer medicines, including treatment safety, side effects, label changes, and recall news.
YOUNG SURVIVAL COALITION (YSC)
(877) 972-1011
www.youngsurvival.org
The Young Survival Coalition works to improve the quality of life for young adults diagnosed with breast cancer and their loved ones. YSC provides breast cancer information, programs, supportive connection, and an annual summit featuring medical experts and workshops.
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